News

Join Us This Weekend for a Special Combined Event at the Roanoke Area MS Center

We’re excited to invite our community to a special gathering this Saturday, May 10th, at the Roanoke Area MS Center, located at 431 Apperson Dr, Salem, VA 24153. This weekend, we’re combining the warmth and connection of our regular Second Saturday Social with a second chance to browse some treasures from our rained-out Junk in the Trunk event!

Second Saturday Social: Connection and Support for the MS Community (12:00 PM – 5:00 PM)

Our Second Saturday Socials are a cornerstone of our community, providing a welcoming and supportive space for individuals living with multiple sclerosis, as well as their caregivers and family members. We believe that connecting with others who understand the unique challenges of MS can make a significant difference, reminding us that we are never truly alone.

Whether you’re a regular attendee or this will be your first time joining us, we’d love to have you! Come and meet others, share your experiences, and build connections in a relaxed and friendly atmosphere. We’ll have games and puzzles available for some lighthearted fun. We will be providing water, and encourage you to bring a snack to share if you’d like to contribute to our community treat table, or feel free to bring your own beverage as well.

Bonus! Rescheduled Junk in the Trunk Treasures (12:00 PM – 5:00 PM)

For those who came out to support our Junk in the Trunk event last week, you’ll remember the unfortunate early downpour. The good news is, we’re giving those treasures another chance to find new homes! We’ll be setting up the remaining items from Junk in the Trunk alongside our Second Saturday Social this weekend.

Special Offer for Last Week’s Participants: If you already paid the $10 registration fee for Junk in the Trunk last Saturday (May 3rd), you are warmly invited to come back and set up your items for free this Saturday!

Spring Cleaning in Action!

In addition to the social gathering and the remaining Junk in the Trunk items, we’ll also be taking the opportunity to do a bit of spring cleaning around the office during the event. Feel free to join in if you’re feeling energetic, or simply relax and socialize while we tidy up.

We’re looking forward to a wonderful afternoon of connection, community spirit, and maybe even finding a hidden gem! We can’t wait to see you this Saturday, May 10th, from 12:00 PM to 5:00 PM at the Roanoke Area MS Center!

Location: 431 Apperson Dr, Salem, VA 24153

 

Navigating Judgment: Real Talk About Life with MS

Living with Multiple Sclerosis presents a unique set of challenges, both physically and emotionally. Beyond managing symptoms, many individuals with MS also face the often-invisible burden of stigma and judgment. This can come from well-meaning but misinformed family and friends, insensitive comments from strangers, or even internalized doubts.

Join the MS Alliance of Virginia on Tuesday, May 13th at Noon via Zoom for an open and honest conversation: “Navigating Judgment: Real Talk About Life with MS.” This is a safe space to connect with others who understand these experiences and to gain practical insights into building a strong support system and setting healthy boundaries.

This will be an interactive discussion, so come prepared to share your experiences and learn from others!

We look forward to connecting with you!

The Multiple Sclerosis Alliance of Virginia is a 100% volunteer 501c3 nonprofit that serves families whose lives have been affected by MS.

Please direct any questions you may have to msav4hope@gmail.com.

Zoom link:

Join Zoom Meeting: https://us02web.zoom.us/j/7127679497
Meeting ID: 712 767 9497
One or call: 1-312-626-6799
or 712-767-9497

Saying So Long, Not Goodbye: Dr. Cramer’s Farewell Interview

With a deep sense of gratitude for her years of dedicated service to the Multiple Sclerosis community, the MS Alliance of Virginia presents this candid and informative farewell interview with Dr. Jill Cramer. As she embarks on a new chapter, Dr. Cramer graciously shares the personal reasons behind her transition, offers crucial guidance for her patients navigating this change, and reflects on her impactful journey. We extend our sincerest thanks to Dr. Cramer for her unwavering commitment and wish her the very best in all her future endeavors.

MS ALLIANCE:  What factors led to your decision to transition from your neurology practice at this time?

DR. CRAMER:  (1) God is calling me in a different direction, and (2) my family needs me in new ways that I cannot fulfill while working the extensive hours that I have had to work to run the business in addition to practicing medicine. Ultimately, running the medical office business is the part that is impossible to do any more, but practicing and the business go together, so when the business closes, I cannot stay.

MS ALLIANCE:  We understand that your patients care deeply about your well-being. Is there anything you would like to share with them regarding your decision?

DR. CRAMER:  Thank you for asking. No, I am not sick, and the cancer remains in remission.

MS ALLIANCE:  Could you share more about your future academic pursuits?

DR. CRAMER:  Separate from the business decision, I got into law school. I planned to go to law school and run the practice until recent developments made it impossible to continue my business. The decision to go to law school was actually made after I had to decide to close the business.

MS ALLIANCE:  Will you continue to see patients at any other locations or institutions following your departure from this practice?

DR. CRAMER:  I will have limited hours at Wytheville. I’ve been working there part-time for a year and enjoy going down there where I do not run the business and also see patients. The administrators who run the practice are lovely people who are patient oriented, and I appreciate working with them in that philosophy.

MS ALLIANCE:  What is the process for patients to obtain their medical records after your departure?

DR. CRAMER:  Request medical records by phone or fax request. We will fax records for free to physician’s offices. We will provide a copy of your records on CD for $6.50 if you pick it up or for $11.50 if you need it mailed to you. Our website will be updated after we close on May 31 in case you forget the details and need to reach us in the future.

MS ALLIANCE:  What is the procedure for patients to obtain necessary prescription refills during and after this transition?

DR. CRAMER:  After May 31, I am not able to refill any medications. Before May 31, please contact the office through phone call or portal message. We will send in as many refills as legally allowed for the medications that we prescribe. We are hearing that some pharmacies will not fill more than a 3 month supply of amphetamines (Adderall, Ritalin, and similar medications), but other controlled medicine we can refill for 6 months and non-controlled medicines we can refill for 12 months.

MS ALLIANCE:  How will ongoing infusion treatments be managed for current patients?

DR. CRAMER:  We will refer infusion patients to local infusion facilities. Carilion will not honor my prescriptions after May 31 unless you are already a Wytheville patient (that is a separate practice with separate rules). We are generally sending patients to the free standing infusion facility that their insurance prefers. Please check with your insurance and let us know where they will cover your infusions. We will write prescriptions for at least six months so you can get your infusions. You will work with Renee in my office to transfer the infusions.

MS ALLIANCE:  What will happen with scheduled appointments after your departure date? Should patients expect them to be cancelled?

DR. CRAMER:  The office closes after May 31. Appointments scheduled in the Salem or Christiansburg offices after May 31 will be cancelled. None of these answers apply to Wytheville, which is a completely separate practice.

MS ALLIANCE:  Are you making specific referrals to other MS specialists or neurologists for your patients’ continued care?

DR. CRAMER:  I am still working hard to bring in MS specialty care to the Salem office. I don’t know if we will be able to set this up, so I am not able to give details at this time. Anyone with MS will be notified if this arrangement happens. Otherwise, I am sending patients to the physicians on the MSAV MS Specialist List. Most of my MS patients need another MS experienced physician to manage their complex care. The closest specialist physicians who do this work are at University of Virginia.

MS ALLIANCE:  Do I need to see a MS Specialist or can my primary care doctor or general neurologist handle my care? What guidance can you offer patients regarding the level of specialized neurological care they may require moving forward?

DR. CRAMER:  Generally, a person who is prescribed disease modifying therapies needs an MS specialist. If you do not have disease modifying therapies, do not take amphetamines, and only have medicines for MS symptoms, some primary care will be comfortable refilling medications until hopefully the Roanoke area can recruit another MS specialist. It is up to the specific general neurologist whether they are familiar enough with your case and your specific treatments whether they can continue your care without an MS specialist.

As I noted previously, I am working with some MS specialists and a company to bring in physicians and an MS trained NP to take over MS care at the Roanoke Area MS Center facility at 431 Apperson Dr in Salem. The agreements have not been confirmed, so I have no further details at this time. Patients with MS will be notified if we are able to set up MS specialist care in that office.

MS ALLIANCE:  What will be the role of other members of your team, such as Elena, the Physician Assistant, after your departure? Will they continue to see patients at this location?

DR. CRAMER:  The entire office is closing May 31. This includes Elena, who will not be seeing patients in the Roanoke-Christiansburg area after May 31.

MS ALLIANCE:  What is the anticipated future of the MS Center and the MS Alliance following your transition? Will there be any changes in their operation or services?

DR. CRAMER:  The Roanoke Area MS Center building was purchased for the benefit of the MS Alliance. The building is still available for MS Alliance activities. What changes will occur depend partly on whether we are successful to bring in MS treating providers to use part of the building. The MS Alliance can discuss the changes they may make. Regardless of whether we are able to bring in MS treating providers for MS care, the building will be more available for MS Alliance activities, parties, meetings, sessions, etc. after August 1.

MS ALLIANCE:  Reflecting on your time here, what are some of the key principles or approaches to patient care that you hope will be carried forward by your colleagues?

DR. CRAMER:  An individualized approach in which the patient’s opinions and experiences are respected is very important. MSAV has built an incredible community of knowledgeable and involved individuals with MS. The original goal of the MS Center was to bring patient-centered care to the Roanoke area, and I would want anyone who comes to the area to provide the medical portion of that mission to continue that patient-centered philosophy. I also would want MS care to be delivered by MS-familiar neurologists, which is why I am generally referring MS patients to the MS specialized neurologists that MSAV has listed.

MS ALLIANCE:  As you embark on your legal career, do you envision any potential intersections or ways your legal work might connect with the healthcare or disability advocacy fields in the future?

DR. CRAMER:  I don’t know what God is setting up for me. I would love to advocate for patients injured by bad health insurance company decisions because I see the ways insurance companies act contrary to patients’ best interests all day long. I don’t even know that holding health insurance companies accountable is even a job. We will see where the training and future leads.

MS ALLIANCE:  Based on your experience, what are some of the biggest challenges you see for individuals living with MS in our region, and what kind of support or changes do you feel are most needed?

DR. CRAMER:  The absolute biggest challenge in my opinion and experience is the lack of resources. Not only do we not have a lot of MS-familiar neurologists, but the employers, systems, education programs … none are well equipped or educated to work with individuals who have MS. A hospital system that truly advocates for the MS community would be a huge benefit to patients with MS. I would like to see a strong treatment team come to the area.

MS ALLIANCE:  What are some of the most significant advancements you’ve witnessed in MS treatment during your practice, and what are you hopeful for in the future of MS care?

DR. CRAMER:  When I started clinical practice in 2002, we had five MS medications. The average life span of a person with MS was shortened by about 15 years. We now have over two dozen disease modifying therapies that are slowing disease and improving life expectancy for people living with MS. Community engagement, education, and understanding – while still needs work – has improved tremendously. I have been honored to be part of the incredible changes in MS care over the past 25 years and appreciate so much your taking this amazing journey with me.

MS ALLIANCE:  Is there anything else you would like to say to your patients and the wider MS community who have supported you during your time here?

DR. CRAMER:  I have appreciated so much the support and partnership that MSAV and patients living with MS have given to me in the almost 20 years we have been together. You are an amazing group, with incredible grit. I am so inspired by each and every one of you and your accomplishments, challenges, and attitudes. Thank you. Thank you a thousand times over. I will miss each and every one of you.

 

Empowering Lives in the Tri-Cities: Mountain Empire MS Support Group

Are you living with Multiple Sclerosis (MS) in the Bristol, VA area or the surrounding Tri-Cities region? The Mountain Empire MS Support Group offers a welcoming and supportive community for individuals affected by MS.

They meet on the first Monday of each month to connect, share experiences, learn valuable information, and build a strong network of support. Their goal is to empower individuals living with MS and provide a space where you can feel understood and encouraged.

Mark your calendars for their upcoming support group meeting on Monday, May 5th! It will be an evening of connection, learning, and a little bit of celebration.

The meeting will start with a meet and greet at 5:30 PM, giving everyone a chance to catch up and connect. The main meeting will begin promptly at 6:00 PM.

This month guest speakers Rhonda Martin and Carla Puckett will be sharing valuable insights and practical advice on How to Live a Better Life with MS

Adding a little festive spirit to the evening, plan to also celebrate Cinco De Mayo!

Location: NorthStar Church, 1145 King Mill Pike, Bristol, VA 24201

Anyone interested in learning more about multiple sclerosis is encouraged to attend. 

Have questions or need more information? Please don’t hesitate to reach out at mountainempiremsgroup@gmail.com.

 

Junk in the Trunk Rain Date: May 3

Get ready to declutter, connect, and celebrate at JUNK IN THE TRUNK!

The MS Alliance of Virginia is throwing a parking lot party, and you’re invited! It’s not just a yard sale – it’s a wellness boost disguised as a treasure hunt! We’re all about clearing out the clutter, connecting with our amazing community, and having a blast!

Why Junk in The Trunk is the ultimate feel-good event:

  • Declutter Your Life, Refresh Your Soul! Let’s face it, we all have those “things” taking up space. This is your chance to give them a new home, lighten your load, and feel amazing!
  • Community Vibes, Good Times! Imagine a vibrant marketplace buzzing with laughter, friendly faces, and the thrill of finding hidden gems. It’s the perfect way to spend a Saturday!
  • Pocket Money & Pure Fun! Whether you’re a seasoned seller or a first-timer, this is your chance to make a little extra cash while enjoying the company of your neighbors.
  • Wellness Through Connection! We believe that community and fellowship are essential for well-being. Come and enjoy the good vibes!
  • Optional Giving, Heartfelt Impact! If you feel inspired to donate a portion of your sales to the MS Alliance of Virginia, we’ll be incredibly grateful. But most importantly, we want you to have fun!

Here’s the scoop:

  • Date: Rain Date – May 3
  • Time: 10:00 AM – 4:00 PM (Setup from 9:00 AM – 10:00 AM)
  • Location: Roanoke Area MS Center, 431 Apperson Drive, Salem
  • Space Rental: Just $10! (A small fee for a big day of fun!)
  • Bring Your Treasures! Clothes, collectibles, crafts, books, tools, jewelry, garage cleanouts, games, baked goods, services – you name it!

Let’s create a day filled with:

  • Laughter and good conversation.
  • The joy of finding unique treasures.
  • The satisfaction of decluttering.
  • The warmth of community spirit.

Come join us for a day of fun, fellowship, and feel-good vibes at JUNK IN THE TRUNK! We can’t wait to see you there, ready to declutter and delight! Reach out to msav4hope@gmail.com for more information.

 

Off-Label and Nonapproved Treatments Used for MS

Treatment for multiple sclerosis (MS) can be complex, involving a range of options, including U.S. Food and Drug Administration (FDA)-approved disease-modifying therapies (DMTs), drugs under clinical investigation, and off-label medications to manage symptoms. If you or a loved one is navigating MS, gaining a clear understanding of these different treatment paths can help support better decisions and conversations with your healthcare team.

Let’s explore how to make sense of these different drug types and treatment options. Read full story HERE…

National MS Society Walk for MS

A heartfelt THANK YOU to everyone who walked, donated, and supported the MS Alliance of Virginia (MSAV) team at the National MS Society Walk for MS this past Saturday, the 12th! A special shoutout to our incredible Captain, Hugh Hall, for leading the charge! Your enthusiasm and dedication made it a truly memorable day.

We’re so grateful for your generosity in supporting the National MS Society’s vital research and advocacy efforts and the funds raised through the Walk for MS go directly towards national initiatives.

At MSAV, we’re dedicated to building a strong local community. Our fundraising efforts focus on creating fellowship and providing programs right here in Virginia, directly supporting those living with MS in our area. We appreciate your continued support in both national and local efforts! 

Deciding Whether Multiple Sclerosis Treatment Should Be Discontinued

— Two trials have reported data, and more are underway…

Should multiple sclerosis (MS) patients stop disease-modifying treatment (DMT) as they get older?

The answer depends on several factors, noted John Corboy, MD, of the Rocky Mountain MS Center at the University of Colorado in Aurora, at the 2025 Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) Forum.

“Many patients are discontinuing DMTs as they age, and there is little data to guide them as to risks or benefits,” Corboy told MedPage Today.

Observational studies and two randomized controlled trials consistently suggest that, in general, disease recurrence after DMT discontinuation diminishes with age and patients may wish to consider stopping MS drugs.

MS Alliance of Virginia Launches the Fun-Raising Spring Fundraiser

The MS Alliance of Virginia is excited to announce the launch of our “Fun-Raising Spring Fundraiser”,  a joyful and impactful initiative that combines fun with fundraising to support individuals living with Multiple Sclerosis (MS) in rural underserved Virginia. The event kicked off with a bang at our MS Awareness event at Bent Mountain Lodge on March 8, and will run through May 10.
As a 100% volunteer-run 501(c)(3) nonprofit, we are committed to providing resources and support to those living with MS without asking them for financial contributions. Instead, we invite our community to participate in this exciting fundraiser, where every dollar donated earns you a chance to win fantastic prizes while making a difference.
How You Can Join the Fun:
For every dollar donated, you’ll receive one entry ticket into our prize drawing. The grand prizes, to be drawn on May 10 at our Second Saturday Social, include stunning handmade pillows by Juanita Gillespie and a $1,000+ Tupperware package. Other exciting prizes, like a $180 polar cooling vest, will be drawn in the weeks leading up to the grand event.
Check Your Numbers!
Unclaimed tickets will be re-entered for future drawings.
Get Your Tickets:
Tickets are available for purchase online by clicking here or from group members, or at our office. When you buy online, your ticket numbers will be entered with your name into the drawing, giving you a chance to participate in every weekly drawing. Even if you win a weekly prize, your ticket will be re-entered for the grand prize drawing on May 10. However, we aim to have different winners for each weekly prize to spread the joy.
Ticket Pricing:
– 1 ticket for $1
– 25 tickets for $20
– 50 tickets for $38
All proceeds will directly benefit our local MS community, supporting essential services such as our MS Center, support groups, and major events like the Brian Mason Respite Camp, Holiday Gala, and March Awareness Weekend. Our office, offering resources like the Second Saturday Social, loaner closet, and equipment room, is open every Monday and Friday from 9 AM to 4 PM.
Join us in this fun-filled fundraising journey. Together, we can enhance the lives of those living with MS in rural Virginia.
About MS Alliance of Virginia:
The MS Alliance of Virginia is dedicated to serving the underrepresented MS community in rural Virginia. Our volunteer-driven initiatives provide essential resources and support, empowering individuals with MS to lead more independent lives.
For more information contact us at:  msav4hope@gmail.com
Get your tickets by clicking HERE….

 

A Mountain of Gratitude: Thank You for a Successful MS Awareness Month Event

The Multiple Sclerosis Alliance of Virginia (MSAV) is overflowing with gratitude for the incredible success of our March is MS Awareness and Rejuvenation Weekend, held at the beautiful Bent Mountain Lodge. The peaceful and scenic setting provided the perfect backdrop for a day of education, connection, and support.

We are deeply thankful to everyone who contributed to making this event so special. Your dedication has made a tangible difference in the lives of those affected by MS in our community.

Our heartfelt appreciation goes to our primary sponsor, TG Therapeutics, for their unwavering commitment to patient care. We were honored to have Dr. Rahul Davé, sponsored by TG Therapeutics, as our keynote speaker. His insightful presentation provided valuable information and inspiration to our attendees.

We also extend our sincere thanks to Genentech, Institute for Public Health Innovation (IPHI), Cycle Pharma and Polar. Your continued support is deeply appreciated.

A special thank you to David and Ginger McDonald, the exceptional owners of Bent Mountain Lodge. Their hospitality and accommodating spirit created a warm and welcoming environment for our event. The serene setting truly enhanced the experience for everyone.

We were also fortunate to have a team of dedicated medical specialists who participated in roundtable discussions, providing personalized insights and answering attendees’ questions. Their expertise and willingness to share their knowledge were invaluable.

And, of course, we extend our deepest gratitude to all the attendees who joined us. Your presence and engagement made the event a resounding success. Your willingness to learn, share, and connect created a powerful sense of community.

This year’s event allowed the Multiple Sclerosis Alliance of Virginia to:

  • Provide a peaceful and informative environment for people affected by MS.

  • Facilitate meaningful connections between patients, medical professionals, and support organizations.

  • Increase awareness about MS and the resources available to those living with the condition.

  • Strengthen our community and support network.

We are inspired by the resilience and strength of the MS community and are committed to continuing our work to provide a sense of community, education, and advocacy.

Thank you again to everyone who made this event possible. Your support is making a real difference in the lives of individuals and families affected by MS in Virginia.

Meet Marion Thomas MSN, NP-C

We are thrilled to introduce you to Marion Thomas MSN, NP-C! Marion has worked with our beloved Dr. Carlos Mora since 2023, and she is eager to continue the exceptional care he has provided to our MS community. Marion brings a wealth of experience and a deep passion for working with patients living with multiple sclerosis. She has a strong background in neurology, having worked as a registered nurse in neurosurgery at UVA Medical Center and in the Neuro-Trauma Intensive Care Unit at Roanoke Memorial Hospital. Her dedication to this field led her to specialize in neurology as a nurse practitioner, and her commitment to providing holistic care for individuals with chronic conditions makes her a perfect fit for our team. Marion believes in connecting with her patients, fostering open communication, and empowering them to actively participate in their care. She is particularly interested in the latest advancements in MS treatment, including disease-modifying therapies and the emerging role of the gut microbiome in MS development and management. She is a Roanoke native and deeply committed to serving the needs of our local MS community.

To help you get to know Marion better, we recently sat down with her for a Q&A session:

What inspired you to specialize in neurology, and specifically, what drew you to working with patients who have Multiple Sclerosis?

Prior to becoming a nurse practitioner, I worked as a registered nurse in neurosurgery at UVA Medical Center, and in the Neuro-Trauma Intensive Care Unit at Roanoke Memorial Hospital. So, my background and passion have always been neurologically focused. I knew when I became a Nurse Practitioner I wanted to continue with my passion in the field of neurology. When I was approached by our management team asking me to work alongside Dr. Mora to serve the MS community through Carilion, I wanted to do research into the disease prior to accepting the position, as I believe you have to love what you do in healthcare in order to make a positive impact. Once I started learning about multiple sclerosis, and how it does not limit itself by demographic, sex, or age, and the holistic approach to treatment, including all of the advances over the past 40 years, I knew this would be a subspecialty I would not only enjoy but feel as though I could make a positive impact by being a part of caring for these patients.

What is your philosophy of care when working with patients with chronic conditions like MS?

I desire to connect with my patients, which opens an opportunity for vulnerability and the real ability to provide the holistic care that I aspire to provide. I think multiple sclerosis and many other chronic neurological conditions require an approach that looks at the person as a whole and therefore needs to be treated as such.

What are some of the most rewarding aspects of working with MS patients for you?

Patients living with multiple sclerosis are some of the most self-aware patients that I serve. They have been forced to get to know their bodies in a way many of them likely thought they never could. They are often in tune with their needs as well as what works for managing their care and what does not. This inspires me to ensure that I am including them in all decisions that are made about their care. Having patients that are motivated about their health and quality of life is always rewarding.

What are some of the biggest challenges you see in providing care for MS patients, and how do you address them?

The most obvious challenge is that I am not a physician, which means my scope of knowledge has its limitations. With that being said, I have established relationships with other individuals in the healthcare system and beyond who have an extensive knowledge of treating MS, and I am always willing to reach out to them in challenging situations. MS is also a very individualized disease, meaning that no patient presents the same, which can pose challenges in care, as what works for one patient may not work for the next. However, I find this to be an inspiring challenge as it forces me as a healthcare provider to develop a greater knowledge and expand my approach to managing symptoms that the disease may cause.

What are some of the most exciting advancements you’ve seen in MS treatment and research in recent years, and where do you see the future of MS treatments heading in the next 5-10 years?

The most exciting advancement is the disease-modifying therapies that continue to be developed that target the disease in a better way, but also in a way that has potentially fewer side effects for patients and are easier to use, such as infusions and once-to-twice-yearly treatment instead of daily or weekly. I see the future of MS as broad, including more disease-modifying therapies and symptom management options.

Are there any particular areas of MS research or treatment that you are particularly interested in or involved with?

I think MS research is constantly evolving in terms of therapies, which is exciting in terms of the future of MS. However, one area I am particularly interested in is the influence of the gut microbiome in the development and management of MS. We are starting to understand the significant role that the gut plays in predisposing patients to MS as well as influencing their disease progression. This is also an area that can be managed through lifestyle and diet changes, which means it is cost-effective and easier to obtain than many of the medications used to treat symptoms of MS.

What can patients expect when they come to see you for their MS care?

I treat all of my patients with kindness, respect, and empathy. I always want to ensure that my patients know we are a team, and I will never make decisions without them, as this is their body and health journey. I want patients to always feel heard and comfortable with the care they receive from me. I tend to take a holistic approach with my care for MS patients as this is a condition that involves every part of their body; therefore, integrating things such as lifestyle changes, therapies, diet, and developing a support system is important to me in managing their symptoms and chronic condition.

Is there anything else you’d like the community to know about you or your practice?

Being a Roanoke native, I know that there is a major need in this community for passionate and accessible care for the MS population. I strive to advocate for our MS patients and make sure they feel supported through their healthcare and community.

We are confident that Marion Thomas will be a valuable asset to our community and a compassionate advocate for our MS patients. Please join us in making her feel welcome to our MS team.

 

 

With MS, Always Remember to Leave a ‘GOTWA’ Contingency Plan

A friend of mine went hiking alone during the warmer months of early autumn. Before he left, he contacted several of his friends via a group chat and let us know when and where he intended to start and the location where he planned to camp for the night. He then designated a time and place where he’d exit the woods and promised that he’d send a message when he was back home. At the time, I remember thinking that he’d essentially left us a five-point contingency plan. Read full story by clicking HERE…

Federal Court Issues Landmark Civil Rights Decision Enabling Thousands of District Residents with Disabilities to Transition Out of Nursing Facilities to the Community

WASHINGTON, D.C. – On December 31, 2024, the U.S. District Court for the District of Columbia issued a resounding judgment in the class action case Brown, et al v. District of Columbia, finding that the District of Columbia has violated the rights of D.C. residents with disabilities under the Americans with Disabilities Act (ADA).

Read full story HERE….

Join the MS Alliance of Virginia Team for the 2025 National MS Society Walk in Roanoke

We are excited to announce that the Multiple Sclerosis Alliance of Virginia has formed a team for the National MS Society Walk, taking place on Saturday April 12, 2025 at Rivers Edge in Roanoke. We warmly invite you to join our MSAV team and be part of this meaningful event.

Our team is unique because we do not ask people living with MS for money. Instead, we kindly request a $10 donation from each team member. This contribution will secure your spot on the team, provide you with our exclusive team shirt, and cover participation in the walk. After the event, we’ll continue the camaraderie with a group lunch, as we’ve enjoyed in past years.

We understand the financial challenges of living with MS. If the $10 donation is a barrier to your participation, please let us know. We are committed to ensuring everyone can join without impacting the funding for the Alliance of Virginia. Our goal is to support the National Society’s research and resources while maintaining our local programs and services.

To register for our team, please use the link attached. For any questions or further information, feel free to contact our team captain, Hugh Hall, at heelstar2000@yahoo.com.

Thank you for considering joining us in this important cause. Together, we can make a difference!

https://events.nationalmssociety.org/team/80948

Reasons to Date Someone With a Chronic Illness

Dating someone with a chronic illness, like MS, is a scary proposition to most people. Fear of the unknown, concern over declining health, fear over their abilities, etc. The list goes on and on. When it comes to dating, it’s easy to find reasons to give up on someone. I thought I’d come up with a different list for those who might consider dating someone with a chronic illness, reasons why it’s a good idea.  Read full story by clicking HERE.

Mindful Management

Being of the scientific persuasion, I’ve been quick to judge “alternative” treatments and stuck to well-tested, peer-reviewed ones — the more clinical, the better. So mindfulness has always felt like a bit of a stretch for me.

Deciding to start mindfulness with MS

Deciding to give it an honest try didn’t happen overnight and was preceded by countless eye rolls from yours truly. But the practice started to show up everywhere I turned, so I decided to try it. Read full story by clicking HERE.

New Website Offers Information for MS Caregivers

A new website aims to provide support to caregivers of people with multiple sclerosis (MS).

The site, MS Care Partner Connection, brings together information on how caregivers can care for themselves while tending to those living with the disease, how to navigate the healthcare system, and how to plan for a better financial future. It includes an artificial intelligence (AI) chatbot that can answer questions.

Accelerated Cure Project for Multiple Sclerosis launched the site with support from EMD Serono’s Embracing Carers initiative.

Read full story HERE…

MS Bowel Problems: Ways To Manage Constipation and More

The symptoms of multiple sclerosis (MS) can vary from person to person and may change over time. But for nearly 70 percent of individuals with MS, symptoms include bowel problems like constipation, diarrhea, incontinence (loss of bowel control), and diverticulitis (inflammation of small pouches that form in the digestive tract). Bowel problems can result from MS’ impact on the body or from unrelated issues, including food sensitivities, lack of fiber, or dehydration.

Many MyMSTeam members report bowel problems. One member said it feels like their days “revolve around the bathroom,” while another noted that bowel issues are limiting their quality of life.

If you have bowel problems, it’s a good idea to understand what causes them, what the symptoms are, and how you can manage them. Read full story HERE….

Long-Term Tecfidera Slows MS Disability Progression in Large Trial

Treatment with Tecfidera (dimethyl fumarate) significantly reduces relapse rates for people with multiple sclerosis (MS), and most MS patients on the approved therapy remain free from disability progression for several years.

That’s according to a final analysis from the Phase 4 ESTEEM clinical trial (NCT02047097), which tracked outcomes from Tecfidera treatment among more than 5,100 MS patients. The results also did not reveal any unexpected safety issues with the long-approved therapy, the researchers noted. Read full story HERE.

IRX4204 Promotes Myelin Repair, Improves Gait in MS Mouse Model

IRX4204, a compound that Io Therapeutics is developing to treat neurological diseases, facilitated myelin repair and improved walking abilities in a mouse model of multiple sclerosis (MS) in a recent study, scientists report.

“Our findings support the therapeutic potential of IRX4204 to promote functional neurologic recovery in MS, a long-sought therapeutic objective in the MS research community,” George S. Robertson, PhD, a study co-author at Dalhousie University in Canada and lead scientist for this work, said in a company press release. Read full story HERE.