Jade and Kala’s story isn’t just about a disease; it’s a testament to the raw emotions and enduring love at the heart of facing a life-altering diagnosis like multiple sclerosis (MS). Before the diagnosis, their young marriage was filled with doctor’s appointments and a constant fog of uncertainty. Kala’s fatigue was dismissed as depression, leaving Jade feeling lost and Kala increasingly isolated.
From Misunderstanding to “Aha!”
“I felt like the depression came from the fatigue, not the other way around,” Jade confesses. Despite his instincts, there was little he could do and the medical misdiagnosis only led to frustration. Yet, when the MS diagnosis finally came, it was both a relief and a new wave of fear.
The ‘aha!’ moment for Jade didn’t come from a doctor’s office. It happened in a room filled with strangers – others with MS sharing their stories at an MS Alliance of Virginia (MSAV) educational event. In those shared experiences, he finally understood the weight his wife carried. It was a powerful turning point in their relationship and he shares, “Other people’s testimony about things like this is really crucial to bring everything into scope.”
Kala’s Fight: Finding Her Voice
For Kala, finding her MS community felt like being welcomed home. “I know it doesn’t sound right, but being around people who are sick like me… it just makes me feel less alone,” she explains.
The road for Kala has been far from easy. She faced skepticism from family who couldn’t grasp the invisible nature of her struggle, and the fear of side effects lingers with each treatment. Yet, in 2018, when a severe MS flare left her unable to walk, talk, or even remember her own name, Kala found a resolve that propels her forward: “That scared me enough to go back on treatment. Now, it’s about doing what’s best for my health and my family.”
The Strength of Community
The simple act of listening, validating, and sharing information can be more powerful than any medication. Support groups aren’t just a place for Kala to learn about MS; they’re where she finds the strength to be her own fiercest advocate – a skill crucial when navigating complex health systems. Furthermore, the MSAV highly values the involvement of families, caregivers, and friends in the organization. Their presence is greatly encouraged at meetings and events, acknowledging their considerable importance.
A Plea for Understanding
“Just because you can’t see it, doesn’t mean we’re not going through hell,” Kala’s words underscore the profound emotional toll that invisible illnesses can inflict. Despite the absence of visible signs, individuals with MS endure a relentless battle within their own bodies. The unpredictable nature of the disease demands constant adaptation, both for the person diagnosed and those who care for them. The journey is fraught with uncertainty, physical discomfort, and emotional distress. It’s a call for the world to extend empathy towards those battling invisible illnesses.
Where to Find Support
If you or someone close to you has been affected by MS, support is waiting. Connection and understanding can change the trajectory of those living with this disease. Find out more about our upcoming events and support group meetings by clicking on the Calendar of Events at www.msallianceofva.org.
Kala and Jade remind us that while medicine fights the disease, it’s community that nurtures the soul, giving strength to battle on, day after day.